Transitional care of adolescents with Multiple Osteochondromas: a convergent mixed-method study 'Patients', parents' and healthcare providers' perspectives on the transfer process'.

ABSTRACT:

Objectives

Multiple osteochondromas (MO) is a rare hereditary disease characterised by numerous benign bone tumours. Its chronic aspect requires a well-organised transition from paediatric care to adult care; however, little is known on organising this care specific for patients with MO. This study aims to gain insight on this topic.

Design

Convergent mixed-method study.

Setting

This study was conducted at the orthopaedic and paediatrics department of an MO-expertise centre in the Netherlands.

Participants

12 patients, 10 parents and 10 healthcare professionals were interviewed. An additional survey was completed by 2 young adults.

Primary and secondary outcomes

The (1) themes on transition, identified through template analysis and (2) transfer experienc

SUBMITTER: Amajjar I 

PROVIDER: S-EPMC8258596 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature