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Improved Parent-Child Communication following a RCT Evaluating a Legacy Intervention for Children with Advanced Cancer.


ABSTRACT: Although legacy-building is a priority for quality palliative care, research has rarely examined effects of legacy interventions in children, particularly their impact on parent-child communication.We examined the impact of a web-based legacy intervention on parent-child communication. We hypothesized that compared to usual care, legacy-making would improve quality of parent-child communication.Between 2015 and 2018, Facebook advertisements were used to recruit families of children (ages 7-17) with relapsed/refractory cancer. Parent-child dyads were randomly assigned to the intervention or usual care group. The intervention website guided children to create digital storyboards over 2 weeks by directing them to answer legacy questions about themselves and upload photographs, videos, and mus

SUBMITTER: Akard TF 

PROVIDER: S-EPMC8259556 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature