The patients' perspective on the burden of idiopathic intracranial hypertension.

ABSTRACT:

Background

Idiopathic intracranial hypertension (IIH) is characterized by increased intracranial pressure without evidence of a tumor or any other underlying cause. Headache and visual disturbances are frequent complaints of IIH patients, but little is known about other symptoms. In this study, we evaluated the patients' perspective on the burden of IIH.

Methods

For this cross-sectional study, we developed an online survey for patients with IIH containing standardized evaluations of headache (HIT-6), sleep (PROMIS Sleep Disturbance Scale) and depression (MDI) in relation to BMI, lumbar puncture opening pressure (LP OP) and treatment.

Results

Between December 2019 and February 2020, 306 patients completed the survey. 285 (93 %) were female, mean age was 36.6 years (± 1

SUBMITTER: Witry M 

PROVIDER: S-EPMC8268504 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature