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Dataset Information

"Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.


ABSTRACT:

Background

Parents and clinicians of children with cancer can provide advice to improve communication that reflects lessons learned through experience. We aimed to identify categories of communication advice offered to parents of children with cancer from clinicians and other parents.

Procedure

(1) Semi-structured interviews with 80 parents of children with cancer at three sites; (2) single-item, open-ended survey administered following 10 focus groups with 58 pediatric oncology clinicians at two sites. We asked participants for communication advice to parents, and analyzed responses using semantic content analysis.

Results

Parents provided five categories of communication advice to other parents. Advocacy involved asking questions, communicating concerns, and speakin

SUBMITTER: Sisk BA 

PROVIDER: S-EPMC8286806 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature