The experience of off periods: Qualitative analysis of interviews with persons with Parkinson's and carepartners.

ABSTRACT:

Introduction

Off period research in Parkinson's disease commonly relies on questionnaires. We aimed to investigate the breadth of off period experiences by interviewing persons with Parkinson's disease (PwP) and carepartners.

Methods

Investigators performed PwP and carepartner dyad interviews using a semi-structured questionnaire to describe off period experiences. Investigators analyzed interview transcripts using a qualitative descriptive approach to identify and compare themes between groups.

Results

Twenty PwP and their carepartners participated in interviews. PwP were on average 65.1 years-old (SD 8.3) and 7.8 years (SD 4.7) after their Parkinson's disease diagnosis. PwP and carepartners identified 13 motor symptoms, 5 of which (immobility, g

SUBMITTER: Armstrong MJ 

PROVIDER: S-EPMC8288715 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature