Dataset Information

Parenting of Children with Autism Spectrum Disorder: A Grounded Theory Study.

ABSTRACT: Parenting a child with an autism spectrum disorder (ASD) involves several processes and emotions during this transition. In addition to the family's natural transition when a child is born, the family of a child with ASD has to deal with the particularities of the disability, its characteristics, and its evolution. This is a qualitative grounded theory study aiming to deepen the knowledge about the process of parenting children with ASD. Data were collected using interviews and observations of nine couples and one single mother. Coding and analysis led to the main theme, which is as follows: parenting of children with ASD as representative of the parents' transformation while caring for the child, also based on adaptation throughout this experience. Parenting is a dynamic process, grounded on the interaction of different contexts, such as family, education, health, and society, and on the co-construction of different times and episodes. These characteristics underline the complex and individual nature of parenting children with autism, which requires specific assessments and interventions by nurses when caring for these families, whether in a family nursing context, community nursing, and pediatric nursing or midwifery.

SUBMITTER: Roquette Viana C

PROVIDER: S-EPMC8306821 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature

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Parenting of Children with Autism Spectrum Disorder: A Grounded Theory Study.

Roquette Viana Clara C Caldeira Sílvia S Lourenço Margarida M Simões Figueiredo Amélia A

Healthcare (Basel, Switzerland) 20210712 7

<h4>Background</h4>Parenting a child with an autism spectrum disorder (ASD) involves several processes and emotions during this transition. In addition to the family's natural transition when a child is born, the family of a child with ASD has to deal with the particularities of the disability, its characteristics, and its evolution.<h4>Methods</h4>This is a qualitative grounded theory study aiming to deepen the knowledge about the process of parenting children with ASD. Data were collected usin ...[more]

PMID: 34356250

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Project description:ObjectiveThe primary objective of this study was to investigate the parenting attitudes towards children with autism spectrum disorders in early childhood in Japan.DesignThis study was a cohort study. The participants were enrolled from January 2011 to March 2014. We obtained the prevalence of autism spectrum disorders at 3 years of age, parenting attitudes and other factors from questionnaires. We divided the participants into two groups, an autism spectrum disorders group and a non-autism spectrum disorders group, and compared the parenting attitudes.SettingThis study used data from a Japanese birth cohort study: the Japan Environment and Children's Study, conducted across 15 regional centres in Japan.ParticipantsThe full dataset of the Japan Environment and Children's Study comprised 104 059 records. We excluded 17 889 records because the answer for the autism spectrum disorders in the questionnaire was blank. As a result, we analysed the remaining 82 411 mother-child pairs.Main outcome measuresThe primary outcome variable was parenting attitudes at 3.5 years of age, which was assessed using a questionnaire. We asked respondents 16 questions related to parenting attitudes, and they answered based on their behaviours. The independent variable was the prevalence of autism spectrum disorders at 3 years of age.ResultsOf the 82 411 participants, the children with autism spectrum disorders at 3 years of age were 372 (0.45%). In most questions about parenting attitudes, the autism spectrum disorders group had unfavourable responses. The difference was particularly noticeable when the parents taught their children social discipline. Unfavourable parenting attitudes were 16.6% in the autism spectrum disorders group and 0.8% in the non-autism spectrum disorders group in the question item with the largest difference between the two groups, a significant difference.ConclusionsParents of children with autism spectrum disorders tended to have unfavourable attitudes, suggesting the importance of parental training.

Dataset Information

Parenting of Children with Autism Spectrum Disorder: A Grounded Theory Study.

Publications

Parenting of Children with Autism Spectrum Disorder: A Grounded Theory Study.

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