To disclose, or not to disclose? Perspectives of clinical genomics professionals toward returning incidental findings from genomic research.

ABSTRACT:

Background

Clinical genomic professionals are increasingly facing decisions about returning incidental findings (IFs) from genetic research. Although previous studies have shown that research participants are interested in receiving IFs, yet there has been an argument about the extent of researcher obligation to return IFs. We aimed in this study to explore the perspectives of clinical genomics professionals toward returning incidental findings from genomic research.

Methods

We conducted a national survey of a sample (n = 113) of clinical genomic professionals using a convenient sampling. A self-administered questionnaire was used to explore their attitudes toward disclosure of IFs, their perception of the duties to return IFs and identifying the barriers for disclosure of I

SUBMITTER: AlFayyad I 

PROVIDER: S-EPMC8314473 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature