Caregiver Burden Among Those Caring for Patients With Spina Bifida.

ABSTRACT:

Objective

1) To identify baseline characteristics of caregivers of school-aged children with spina bifida; 2) To identify independent predictors of caregiver burden in this population.

Materials and methods

A survey was distributed via Facebook advertising to caregivers of patients with congenital genitourinary anomalies from May to September 2018. Eligible participants (n = 408) entailed English-speaking adults who are involved in the patient's care and attend ≥50% of their medical appointments. Caregiver burden was assessed using the Caregiver Burden Inventory (CBI), where higher scores indicate higher burden. CBI ≥24 indicates need for respite and CBI ≥36 indicates high risk of burnout. Bivariate analyses (t-tests and chi-square tests) were conducted using STATA software.

SUBMITTER: Sadighian MJ 

PROVIDER: S-EPMC8319054 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature