Protocol for developing a healthcare transition intervention for young people with spinal cord injuries using a participatory action research approach.

ABSTRACT:

Introduction

While healthcare transition (HCT) interventions are recognised as an important area in paediatric rehabilitation, there has been limited research focusing on young people with spinal cord injuries (SCI). In this study, researchers will collaborate with young people with SCI and their parents/caregivers to develop, implement and evaluate the feasibility and acceptability of a HCT intervention aimed at supporting young people with SCI during their transition from paediatric to adult healthcare services.

Methods and analysis

A participatory action research (PAR) approach will be used to co-develop the HCT intervention with young people with SCI aged 14-25 years and their parents/caregivers. Three phases will be conducted to address the five objectives of this study

SUBMITTER: Bray EA 

PROVIDER: S-EPMC8323394 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature