Measuring What Matters for Children: A Systematic Review of Frequently Used Pediatric Generic PRO Instruments.

ABSTRACT:

Objective

To provide an assessment of the quality of the most frequently used self-reported, generic patient-reported outcome measures (PROMs) that measure health-related quality of life (HRQoL) in children against the good research practices recommended by ISPOR task force for the pediatric population.

Method

Literature search was conducted on OvidSP database to identify the generic pediatric PROMs used in published clinical studies. The quality of PROMs used in more than ten clinical studies were descriptively evaluated against the ISPOR task force's good research practices.

Results

Six PROMs were evaluated, namely Pediatric Quality-of-Life inventory 4.0 (PedsQL), Child Health Questionnaire (CHQ), KIDSCREEN, KINDL, DISABKIDS and Child Health and Illness Profile (CHI

SUBMITTER: Arsiwala T 

PROVIDER: S-EPMC8332594 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature