A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer.

ABSTRACT:

Context

Among adults with cancer, measures for high quality end-of-life care (EOLC) include avoidance of hospitalizations near end of life. For children with cancer, no measures exist to evaluate or improve EOLC, and adult quality measures may not apply.

Objective

We engaged key stakeholders to explore EOLC priorities for children with cancer and their families, and to examine relevance of existing adult EOLC quality measures for children with cancer.

Methods

In a multicenter qualitative study, we conducted interviews and focus groups with: adolescents and young adults (AYAs) with advanced cancer, parents of children with advanced cancer, bereaved parents, and interdisciplinary healthcare professionals. We transcribed, coded, and employed thematic analysis to summariz

SUBMITTER: Ananth P 

PROVIDER: S-EPMC8339188 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature