Stakeholder Perspectives on Engaging With Cerebral Palsy Research Studies After Onset of COVID-19 in the United States.

ABSTRACT:

Objective

To investigate the effect of the coronavirus disease 2019 (COVID-19) pandemic on perspectives toward participation in cerebral palsy (CP) research.

Design

An online survey with questions relating to the comfort levels of research participation was filled out by people who had CP or had a child with CP.

Setting

The online survey was administered through Research Electronic Data Capture platform.

Participants

A total of 233 (n=233) individuals with CP (42.5%; n=99) or with a child with CP (57.1%; n=133) consented and at least partially completed the online survey (n=210 complete; n=23 partially complete). All participants resided in the United States.

Interventions

Not applicable.

Main outcome measures

Readiness to participate was analyzed

SUBMITTER: Joshi D 

PROVIDER: S-EPMC8349750 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature