Sharing administrative health data with private industry: A report on two citizens' juries.

ABSTRACT:

Background

There is good evidence of both community support for sharing public sector administrative health data in the public interest and concern about data security, misuse and loss of control over health information, particularly if private sector organizations are the data recipients. To date, there is little research describing the perspectives of informed community members on private sector use of public health data and, particularly, on the conditions under which that use might be justified.

Methods

Two citizens' juries were held in February 2020 in two locations close to Sydney, Australia. Jurors considered the charge: 'Under what circumstances is it permissible for governments to share health data with private industry for research and development?'

Results

SUBMITTER: Street J 

PROVIDER: S-EPMC8369100 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature