The meaning of autonomy when living with dementia: A Q-method investigation.

ABSTRACT:

Background and aims

Sensitivity to the rights of people with dementia is a key principle cited in the World Health Organisation's global action plan on dementia. Some critics question whether rights-based approaches embody loose and ill-defined ideas incapable of bringing about meaningful change. Exercising the right to autonomy is considered a core problem for people living with dementia. The tradition of individual sovereignty dominates ideas about autonomy, although the person as an individual is not a cross-culturally universal concept. This study explored the viewpoints of people with dementia and family carers regarding the meaning of autonomy with a view to informing rights-based practice.

Methods

Twenty participants, people living with dementia and family carers, eac

SUBMITTER: Wolfe SE 

PROVIDER: S-EPMC8369913 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature