Identifying specific needs in adult cystic fibrosis patients: a pilot study using a custom questionnaire.

ABSTRACT:

Background

Adult patients with cystic fibrosis (CF) experience daily physical symptoms and disabilities that can be challenging to address for health care teams.

Methods

We sought to identify the most frequent topics that CF adults need to discuss with health care teams using a custom questionnaire including 62 items.

Results

Fifty patients were included, 70% men, mean age 27.6 years, with a mean body mass index of 21.8 kg/m². Mean FEV₁% was 64% of predicted value. Forty-two percent of patients selected at least one topic. The most frequently selected topics were fatigue (20%), professional or scholar worries (18%), procreation (16%), physical activities (16%) and evolution of CF disease (16%). Women were more frequently concerned about fatigue,

SUBMITTER: Dury S 

PROVIDER: S-EPMC8371823 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature