Mixed methods evaluation of a self-management group programme for patients with neuromuscular disease and chronic fatigue.

ABSTRACT:

Objective

To obtain insight into experiences of patients with a neuromuscular disease and chronic fatigue and their healthcare professionals regarding content and delivery of a multidisciplinary outpatient self-management group programme to improve social participation. This will inform future implementation.

Design

A mixed method study alongside a randomised controlled trial.

Setting

University hospital, rehabilitation centre and community health centre.

Participants

29 patients with a neuromuscular disease and chronic fatigue and 13 healthcare professionals participated in this mixed methods study.

Intervention

Multidisciplinary group programme, called Energetic, consisted of a 4 months intervention with weekly meetings and covered four modules: (1) in

SUBMITTER: Veenhuizen Y 

PROVIDER: S-EPMC8388284 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature