Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups.

ABSTRACT:

Background

For unclear reasons, minorities have been historically underrepresented in multiple sclerosis (MS) clinical trials. We hypothesized that different perceptions and preferences about research participation among racial and ethnic groups contribute to this imbalance.

Methods

Members of the MS Minority Research Engagement Partnership Network developed a Web-based survey in English and Spanish on research impressions, concerns, and preferences regarding study attributes among people with MS. Invitations to take the survey were distributed by network members and partner organizations.

Results

We included 2599 participants with MS (2111 White, 215 African American; 188 Hispanic). Consistently disliked study attributes included potential harms to health and confusi

SUBMITTER: Pimentel Maldonado DA 

PROVIDER: S-EPMC8405146 | biostudies-literature | 2021 Jul-Aug

REPOSITORIES: biostudies-literature