Patient participation in cancer network governance: a six-year case study.

ABSTRACT:

Background

Patient participation in decision-making has become a hallmark of responsive healthcare systems. Cancer networks in many countries have committed to involving people living with and beyond cancer (PLC) at multiple levels. However, PLC participation in network governance remains highly variable for reasons that are poorly understood. This study aims to share lessons learned regarding mechanisms that enable PLC participation in cancer network governance.

Methods

This multiple case study, using a qualitative approach in a natural setting, was conducted over six years in three local cancer networks within the larger national cancer network in Quebec (Canada), where PLC participation is prescribed by the Cancer Directorate. Data were collected from multiple sources, in

SUBMITTER: Tremblay D 

PROVIDER: S-EPMC8423332 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature