"We Are Anxious Every Day": COVID-19 Impacts on Youth with Spina Bifida.

ABSTRACT:

Objective

This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB.

Methods

AYA with SB (15-25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualita

SUBMITTER: Stiles-Shields C 

PROVIDER: S-EPMC8436369 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature