'This is time we'll never get back': a qualitative study of mothers' experiences of care associated with neonatal death.

ABSTRACT:

Aims

To explore the perceptions and experience of women whose baby died in the neonatal period about their care in the perinatal period, on delivery suite, in the neonatal unit and afterwards, expressed in their own words.

Design

Secondary analysis of the Listening to Parents study, using thematic analysis based on the open text responses from a postal survey of parents whose baby died in the neonatal period in England. Women were asked about care during the pregnancy, labour and birth, around the time the baby died and about neonatal care. Women whose pregnancy was terminated for fetal abnormality were excluded from this analysis.

Results

Completed questionnaires were received from 249 mothers of whom most (78%) responded with open text. Overarching themes identified

SUBMITTER: Redshaw M 

PROVIDER: S-EPMC8438878 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature