COVID-19: Impact, experiences, and support needs of children and young adults with cystic fibrosis and parents.

ABSTRACT:

Background

Little is known about the impact of COVID-19 and the United Kingdom's (UK) national shielding advice on people with cystic fibrosis (CF) and their families. This study explored the experiences and support needs of children and young adults (CYAs) with CF, and parents who have a child with CF, during the COVID-19 pandemic.

Methods

CYAs with CF and parents of CYAs with CF completed a UK wide online survey with open and closed questions exploring experiences, information and support needs and decision-making processes. Qualitative thematic content analysis and descriptive quantitative analyses were undertaken.

Results

CYAs aged 10-30 years (n = 99) and parents of CYAs aged 0-34 years (n = 145) responded. Parents (72.7%) and CYAs (50.0%) worried about the virus

SUBMITTER: Collaco N 

PROVIDER: S-EPMC8441823 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature