Investigating Mental Health Service User Opinions on Clinical Data Sharing: Qualitative Focus Group Study.

ABSTRACT:

Background

Sharing patient data can help drive scientific advances and improve patient care, but service users are concerned about how their data are used. When the National Health Service proposes to scrape general practitioner records, it is very important that we understand these concerns in some depth.

Objective

This study aims to investigate views of mental health service users on acceptable data sharing to provide clear recommendations for future data sharing systems.

Methods

A total of 4 focus groups with 4 member-checking groups were conducted via the internet between October 2020 and March 2021, with a total of 22 service users in the United Kingdom. Thematic analysis was used to identify the themes.

Results

Six main themes, with several subthemes were

SUBMITTER: Adanijo A 

PROVIDER: S-EPMC8449295 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature