The role of causal knowledge in stigma considerations in African genomics research: Views of South African Xhosa people.

ABSTRACT:

Introduction

Advances in genomics research have raised several ethical concerns. One concern is the potential impact of genomics research on stigma experienced by people affected by a disease. Studies have found that the type of illness as well as disease causal beliefs impact on the relation between genetic attribution and stigma. This study explored the potential impact of genetic attribution of disease on stigma among Xhosa people with Rheumatic Heart Disease (RHD).

Methods

Study participants were 46 Xhosa people with RHD living in the Western Cape Province of South Africa. Using video vignettes in 7 focus group discussions we explored whether and how genetic attribution may impact on disease-stigma. Vignettes introduced participants to non-genetic and genetic causal expl

SUBMITTER: Matshabane OP 

PROVIDER: S-EPMC8450780 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature