Ileostomy or ileal pouch-anal anastomosis for ulcerative colitis: patient participation and decisional needs.

ABSTRACT:

Background

Up to 30% of patients with ulcerative colitis will undergo surgery resulting in an ileal pouch-anal anastomosis (IPAA) or permanent end ileostomy (EI). We aimed to understand how patients decide between these two options.

Methods

We performed semi-structured interviews with ulcerative colitis patients who underwent surgery. Areas of questioning included the degree to which patients participated in decision-making, challenges experienced, and suggestions for improving the decision-making process. We analyzed the data using a directed content and thematic approach.

Results

We interviewed 16 patients ranging in age from 28 to 68 years. Nine were male, 10 underwent IPAA, and 6 underwent EI. When it came to participation in decision-making, 11 patients felt inde

SUBMITTER: Cohan JN 

PROVIDER: S-EPMC8451075 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature