The Parkinson's Real-World Impact Assessment (PRISM) Study: A European Survey of the Burden of Parkinson's Disease in Patients and their Carers.

ABSTRACT:

Background

A greater understanding of the everyday experiences of people with Parkinson's disease (PD) and their carers may help improve clinical practice.

Objective

The Parkinson's Real-world Impact assesSMent (PRISM) study evaluated medication use, health-related quality of life (HRQoL) and the use of healthcare resources by people with PD and their carers.

Methods

PRISM is an observational cross-sectional study, in which people with PD and their carers completed an online survey using structured questionnaires, including the Parkinson's Disease Quality of Life Questionnaire (PDQ-39), Non-Motor Symptoms Questionnaire (NMSQuest) and Zarit Burden Interview (ZBI).

Results

Data were collected from 861 people with PD (mean age, 65.0 years; mean disease duration, 7

SUBMITTER: Tolosa E 

PROVIDER: S-EPMC8461669 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature