Knowledge, attitude and practices regarding health self-management among patients with osteogenesis imperfecta in China: an online cross-sectional survey.

ABSTRACT:

Objectives

Assessing the knowledge, attitude and practices (KAP) regarding health self-management among patients with osteogenesis imperfecta (OI) in China.

Design

An online cross-sectional survey.

Setting

A structured questionnaire was distributed online through China-Dolls Center for Rare Disorders (CCRD), a non-governmental charity in China.

Participants

Participants were all patients with OI from CCRD. After stratified sampling according to the economic level of residential city, 901 patients were proportionally selected and 869 patients completed the survey (response rate: 96.4%).

Main outcome measures

Demographic characteristics and KAP information were gathered using a 5-point Likert scale. The score of each dimension of KAP was the sum of the sco

SUBMITTER: Lai Y 

PROVIDER: S-EPMC8477317 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature