Physiotherapy for epidermolysis bullosa: clinical practice guidelines.

ABSTRACT: Epidermolysis bullosa (EB) is characterized by skin fragility with blister formation occurring spontaneously or following minor trauma such as gentle pressure or friction. Current physiotherapy practice is based on anecdotal care, clinical expertise and creative problem solving with caregivers and individuals with EB. Evidence based intervention is needed to establish a foundation of knowledge and to guide international practitioners to create and improve standards of care to effectively work with individuals living with EB. This clinical practice guideline (CPG) was created for the purpose of providing evidence based interventions and best clinical practices for the physiotherapy management of individuals with EB. A survey was conducted within the EB community and six outcomes were identi

SUBMITTER: Weisman A 

PROVIDER: S-EPMC8481321 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature