Development of a core outcome set for evaluative research into paediatric cerebral visual impairment (CVI), in the UK and Eire.

ABSTRACT:

Objectives

Cerebral visual impairment (CVI) comprises a heterogeneous group of brain-related vision problems. A core outcome set (COS) represents the most important condition-specific outcomes according to patients, carers, professionals and researchers. We aimed to produce a COS for studies evaluating interventions for children with CVI, to increase the relevance of research for families and professionals and thereby to improve outcomes for affected children.

Design

We used methods recommended by the Core Outcome Measures in Effectiveness Trials Initiative. These included a proportionate literature review of outcomes used in previous studies; qualitative interviews with children and families; a two-round Delphi survey involving parents, children and professionals and a cons

SUBMITTER: Pease A 

PROVIDER: S-EPMC8483040 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature