Parental experience of the neuromotor development of children with congenital heart disease: an exploratory qualitative study.

ABSTRACT:

Background

Children with severe congenital heart disease (CHD) are a group of children at risk for neurodevelopmental impairments. Motor development is the first domain to show a delay during the first year of life and may significantly contribute to parental concerns, stress, and difficulties in early child-parent attachment. Thus, the aim of the study was to better understand the wishes and concerns of parents of children with CHD and explore their experience of their children's neuromotor development in the first year of life.

Methods

In this qualitative study, fourteen families were recruited. Their children were aged 1-3 years and had undergone open heart surgery within the first 6 months of life. Semi-structured interviews were audio-recorded and transcribed. The data

SUBMITTER: Mitteregger E 

PROVIDER: S-EPMC8485514 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature