'We have been in lockdown since he was born': a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UK.

ABSTRACT:

Objectives

This study aimed to explore the experiences of parents caring for children with intellectual and developmental disabilities (IDD) during the UK national lockdown in spring 2020, resulting from the COVID-19 pandemic.

Design

Participants were identified using opportunity sampling from the IMAGINE-ID national (UK) cohort and completed an online survey followed by a semistructured interview. Interviews were analysed using thematic analysis.

Setting

Interviews were conducted over the telephone in July 2020 as the first UK lockdown was ending.

Participants

23 mothers of children with intellectual and developmental disabilities aged 5-15 years were recruited.

Results

Themes reported by parents included: managing pre-existing challenges during a time

SUBMITTER: Wolstencroft J 

PROVIDER: S-EPMC8487017 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature