Equitable data sharing in epidemics and pandemics.

ABSTRACT:

Background

Rapid data sharing can maximize the utility of data. In epidemics and pandemics like Zika, Ebola, and COVID-19, the case for such practices seems especially urgent and warranted. Yet rapidly sharing data widely has previously generated significant concerns related to equity. The continued lack of understanding and guidance on equitable data sharing raises the following questions: Should data sharing in epidemics and pandemics primarily advance utility, or should it advance equity as well? If so, what norms comprise equitable data sharing in epidemics and pandemics? Do these norms address the equity-related concerns raised by researchers, data providers, and other stakeholders? What tensions must be balanced between equity and other values?

Methods

To explore these

SUBMITTER: Pratt B 

PROVIDER: S-EPMC8493940 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature