Psychometric properties of patient reported outcome measures in idiopathic pulmonary fibrosis.

ABSTRACT:

Background

Various patient reported outcome measures (PROMs) are used in idiopathic pulmonary fibrosis (IPF). We aimed to describe their psychometric properties, assess their relationship with 1-year mortality and determine their minimal clinically important differences (MCIDs).

Methods

In a prospective multicentre study, participants with IPF completed the King's Brief Interstitial Lung Disease Questionnaire (K-BILD), the modified Medical Research Council (mMRC) dyspnoea scale, St George's Respiratory Questionnaire (SGRQ) and University of California, San Diego shortness of breath questionnaire (UCSD-SOBQ) three-monthly intervals over a 12-month period. Forced vital capacity (FVC) was matched with questionnaires and mortality was captured. Anchor- and distribution-based met

SUBMITTER: Kim JW 

PROVIDER: S-EPMC8495510 | biostudies-literature | 2021 Jan-Dec

REPOSITORIES: biostudies-literature