Hispanic Caregivers' experience of pediatric type 1 diabetes: A qualitative study.

ABSTRACT:

Objective

It is widely recognized that Type 1 Diabetes (T1D) outcomes are worse among Hispanic children; however, little is published about the perspectives of these patients and their caregivers. Our intent was to characterize the lived experience of Hispanic caregivers of children with T1D, focusing on the role of language and culture and their perspectives on current medical care and alternative care models. We studied Hispanic caregivers of patients (age 2-17 years) with T1D of greater than 6 months' duration.

Research design and methods

We completed semi-structured interviews and focus-groups of a purposive sample of 20 members of our population of interest. We developed a codebook and completed multidisciplinary consensus coding, then conducted iterative thematic analy

SUBMITTER: Tremblay ES 

PROVIDER: S-EPMC8530860 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature