Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women.

ABSTRACT:

Purpose

There is limited research linking data sources to evaluate the multifactorial impacts on the quality of treatment received and financial burden among young women with breast cancer. To address this gap and support future evaluation efforts, we examined the utility of combining patient survey and cancer registry data.

Patient and methods

We administered a survey to women, aged 18-39 years, with breast cancer from four U.S. states. We conducted a systematic response-rate analysis and evaluated differences between racial groups. Survey responses were linked with cancer registry data to assess whether surveys could reliably supplement registry data.

Results

A total of 830 women completed the survey for a response rate of 28.4 %. Blacks and Asian/Pacific Islanders

SUBMITTER: Subramanian S 

PROVIDER: S-EPMC8533048 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature