The Lived Experience of Myasthenia Gravis: A Patient-Led Analysis.

ABSTRACT:

Introduction

A greater understanding of the reality of living with myasthenia gravis (MG) may improve management and outcomes for patients. However, there is little published data on the patient perspective of how MG impacts life. Our objective was to reveal the lived experience of MG from the patient perspective.

Methods

This analysis was led by an international Patient Council comprising nine individuals living with MG who serve as local/national patient advocates in seven countries (Europe and the United States). Insights into the lived experience of MG were consolidated from three sources (a qualitative research study of 54 people with MG or their carers from seven countries; a previous Patient Council meeting [September 2019]; and a literature review). Insights were pri

SUBMITTER: Law N 

PROVIDER: S-EPMC8540870 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature