Thinking ahead: Parents' worries about late effects of childhood cancer treatment.

ABSTRACT:

Background

Many childhood cancersurvivors experience at least one late effect of treatment, and both late effects and persistent cancer-related worry can negatively impact quality of life in survivorship. Little is known about the prevalence or impact of parental worry about late effects early in treatment. This study evaluated parental perceived likelihood, impact, and worry about late effects of childhood cancer.

Procedure

We surveyed 96 parents of pediatric cancer patients at Dana-Farber/Boston Children's Cancer and Blood Disorders Center within a year of diagnosis. Parents were asked about their experiences with late effects communication, general worry about late effects, and specific late effect worries.

Results

Most (96%) parents valued information about late e

SUBMITTER: Greenzang KA 

PROVIDER: S-EPMC8541904 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature