Patient powered research: an approach to building capacity for a hardly reached patient population to engage in cancer research.

ABSTRACT:

Background

Participating in clinical trials is a metric of high-quality cancer care and improves survival. However, Black individuals with cancer are less likely to be enrolled in clinical trials and experience a disproportionate burden of cancer mortality compared to Whites. Patient-engaged research is one potential strategy to address racial inequities in clinical trials, but little is known about best practices for engaging Black individuals and communities impacted by cancer in research partnerships.

Methods

We used a community engaged research approach to establish a patient advisory council (PAC) representative of the patient population served by a safety net hospital cancer center. We outline the process of establishing the PAC and the lessons learned.

Results

SUBMITTER: Charlot M 

PROVIDER: S-EPMC8547568 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature