Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in Sweden.

ABSTRACT: In-depth understanding of factors perceived by young people with congenital heart disease (CHD) to affect continued follow-up care is needed to tailor preventive strategies for discontinuation of follow-up care. To identify facilitating factors, low-prevalence settings in terms of discontinuation should be investigated.

Objective

This qualitative study describes factors affecting continued follow-up as perceived and experienced by young adults with CHD.

Participants

Using a mixed purposive sampling technique, 16 young adults with CHD were included. Three participants had discontinued follow-up care and 13 had continued follow-up care after transfer.

Setting

Participants were recruited from all seven university hospitals in Sweden, which is considered a low-prevalence s

SUBMITTER: Skogby S 

PROVIDER: S-EPMC8552172 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature