Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey.

ABSTRACT:

Background

Digital health research repositories propose sharing longitudinal streams of health records and personal sensing data between multiple projects and researchers. Motivated by the prospect of personalizing patient care (precision medicine), these initiatives demand broad public acceptance and large numbers of data contributors, both of which are challenging.

Objective

This study investigates public attitudes toward possibly contributing to digital health research repositories to identify factors for their acceptance and to inform future developments.

Methods

A cross-sectional online survey was conducted from March 2020 to December 2020. Because of the funded project scope and a multicenter collaboration, study recruitment targeted young adults in Denmark and

SUBMITTER: Nunes Vilaza G 

PROVIDER: S-EPMC8590194 | biostudies-literature | 2021 Oct

REPOSITORIES: biostudies-literature