The methodology of a "living" COVID-19 registry development in a clinical context.

ABSTRACT:

Objective

The aim of this study was to describe an innovative methodology of a registry development, constantly updated for the scientific assessment and analysis of the health status of the population with COVID-19.

Study design and setting

A methodological study design to develop a multi-site, Living COVID-19 Registry of COVID-19 patients admitted in Fondazione Don Gnocchi centres started in March 2020.

Results

The integration of the living systematic reviews and focus group methodologies led to a development of a registry which includes 520 fields filled in for 748 COVID-19 patients recruited from 17 Fondazione Don Gnocchi centres. The result is an evidence and experience-based registry, according to the evolution of a new pathology which was not known before outbr

SUBMITTER: Arienti C 

PROVIDER: S-EPMC8590739 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature