Family members' perspectives on learning cognitively unimpaired older adults' amyloid-β PET scan results.

ABSTRACT:

Background/objectives

Disclosure of Alzheimer's disease (AD) risk information to cognitively unimpaired older adults may become more common if preclinical AD is shown to be identifiable and amenable to treatment. Little, however, is known about how families will react to this information.

Design and setting

Semi-structured telephonic interviews.

Participants

Seventy study partners (mean age = 68 [±11]; 50% female; 70% spouses/significant others; 18% children, siblings; 12% friends) of cognitively unimpaired adults who learned a personalized AD dementia risk estimate and an amyloid-β PET scan result through their participation in preclinical AD research.

Measurement

Interviewees were asked about their desire for information regarding their family member's AD dem

SUBMITTER: Largent EA 

PROVIDER: S-EPMC8595546 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature