Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies.

ABSTRACT:

Introduction/aims

Duchenne and Becker muscular dystrophies (DBMD) are X-linked neuromuscular disorders characterized by progressive muscle weakness, leading to decreased mobility and multisystem complications. We estimate productivity costs attributable to time spent by a parent caring for a male child under the age of 18 y with DBMD, with particular focus on female caregivers of boys with Duchenne muscular dystrophy (DMD) who have already lost ambulation.

Methods

Primary caregivers of males with DBMD in the Muscular Dystrophy Surveillance and Research Tracking Network (MD STARnet) were surveyed during 2011-2012 on family quality of life measures, including labor market outcomes. Of 211 respondents, 96 female caregivers of boys with DBMD were matched on state, year of survey

SUBMITTER: Soelaeman RH 

PROVIDER: S-EPMC8595851 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature