Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.

ABSTRACT:

Background

The role of cystic fibrosis (CF) care team members in delivering palliative care (PC) remains undefined. We aimed to understand the PC skills of CF care teams.

Methods

CF care team members ("clinicians"), adults with CF ("patients"), and family caregivers ("caregivers") rated the ability of CF clinicians to provide aspects of PC using a five-point scale ("poor" to "excellent"). Median ratings were compared between groups.

Results

A total of 70 patients, 100 caregivers, and 350 clinicians participated. Clinicians consistently rated their PC skills higher than patients or caregivers rated them, particularly for advanced PC skills. While clinicians, patients, and caregivers rated clinicians as "very good" at basic pain assessment and "good" at discussing progn

SUBMITTER: Trandel ET 

PROVIDER: S-EPMC8597706 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature