A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers.

ABSTRACT: Homebound older adults have not had a voice in establishing a research agenda relevant to their needs and perspectives. We engaged homebound older adults receiving home-based primary care and caregivers to serve as stakeholder advisors to develop a patient- and caregiver-centered research agenda for home-based care. Over 9 months, we facilitated eight tablet-enabled videoconference meetings. We oriented advisors to patient-centered outcome research and research question development. Advisors developed and prioritized a list of 14 research domains and 127 associated research questions. The top three prioritized research domains in descending rank order (number of associated research questions) were out-of-pocket costs of caregiving (10), access to home-based care and related policy issues (

SUBMITTER: Leff B 

PROVIDER: S-EPMC8604613 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature