Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation.

ABSTRACT:

Background

This study examined the impact of Duchenne muscular dystrophy (DMD) on family-member caregivers in terms of quality of life, life stress, and indirect costs, as compared to a stratified comparison group of parents of similar-age children without DMD.

Methods

A web-based survey included DMD caregivers and a nationally representative comparison group of parents of children without DMD stratified by Child Age Group. Outcomes included quality of life, resilience, caregiver impact, stressful life events, financial strain, out-of-pocket expenditures, work productivity and unrealized ambitions. General linear models assessed the main effect of Caregiver Group and the interaction of Caregiver Group with Child-Age-Group, after adjusting for demographic covariates.

Resul

SUBMITTER: Schwartz CE 

PROVIDER: S-EPMC8605451 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature