Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic.

ABSTRACT:

Background

COVID-19 has affected our society at large, particularly vulnerable groups, such as children suffering from rare diseases and their parents. However, the psychosocial influences of COVID-19 on these have yet to be investigated. As such, the study's goal was to evaluate the health-related quality of life (HRQoL), quality of life (QoL), and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic and lockdown measures.

Methods

A survey of n = 210 parents of children with rare congenital surgical diseases and a control group of n = 88 parents of children without rare diseases was conducted cross-sectionally between April 2020 to April 2021. Data on HRQoL, QoL, and mental health was collected using standardized ps

SUBMITTER: Fuerboeter M 

PROVIDER: S-EPMC8626760 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature