Identifying research priorities in newborn medicine: a Delphi study of parents' views.

ABSTRACT:

Objective

Neonatal conditions can have lifelong implications for the health and well-being of children and families. Traditionally, parents and patients have not been included in shaping the agenda for research and yet they are profoundly affected by the neonatal experience and its consequences. This study aimed to identify consensus research priorities among parents/patients of newborn medicine in Australia and New Zealand.

Design

Parents/patients with experience of neonatal care in Australia and New Zealand completed an online Delphi study to identify research priorities across four epochs (neonatal admission, early childhood, childhood/adolescence and adulthood). Parents/patients first generated key challenges in each of these epochs. Through inductive thematic analysis,

SUBMITTER: Eeles AL 

PROVIDER: S-EPMC8628322 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature