Psychosocial wellbeing among children and adults with arthrogryposis: a scoping review.

ABSTRACT:

Background

Arthrogryposis multiplex congenita (AMC) is a group of congenital conditions characterized by joint contractures in two or more body areas. Management of AMC starts early in life and focuses on improving mobility and function through intensive rehabilitation and surgical interventions. Psychosocial wellbeing is an important determinant of health and the psychosocial experience of individuals with AMC should be considered in the management of this condition. The aim of this scoping review was to explore what is known about the psychosocial wellbeing of children and adults with AMC, to identify the outcome measures used and to explore the factors associated with psychosocial outcomes in this population.

Methods

A comprehensive search in four databases was conducted.

SUBMITTER: Cachecho S 

PROVIDER: S-EPMC8628374 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature