Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.

ABSTRACT: Direct-to-consumer genetic testing is marketed as a tool to uncover ancestry and kin. Recent studies of actual and potential users have demonstrated that individuals' responses to the use of these tests for these purposes are complex, with privacy, disruptive consequences, potential for misuse, and secondary use by law enforcement cited as potential concerns. We conducted six focus groups with a diverse sample of participants (n = 62) who were aware of but had not used direct-to-consumer genetic tests, in an effort to understand more about what people considering these tests think about the potential value, risks, and benefits of such testing, taking into account use by third parties, such as potential kin and law enforcement. Participants differed widely in the perceived value of direct-t

SUBMITTER: Hazel JW 

PROVIDER: S-EPMC8629298 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature