The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.

ABSTRACT:

Purpose

More than a decade after the Genetic Information Nondiscrimination Act (GINA) was passed, there is a paucity of research on the general public's awareness of GINA. This study's objective was to assess knowledge of GINA and concerns of genetic discrimination.

Methods

A quota-based sample of US adults (N = 421) was recruited via Qualtrics Research Services to complete an online survey.

Results

Overall, participants had a mean age of 43.1 (SD = 13.9), 51.8% identified as female, 63.1% identified as non-Hispanic White, and 38.4% had ≥4-year college degree. Respondents reported relatively low subjective knowledge of GINA (M = 3.10, SD = 1.98; 7-point Likert scale). Among respondents reporting high subjective knowledge of GINA (16.2%), 92.6% incorrectly reported or

SUBMITTER: Lenartz A 

PROVIDER: S-EPMC8633070 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature